Find Your Patient Support Community
Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
Why Use Phormulate?
Verified Communities
We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.
Global Reach
Access support groups from around the world, or find local communities near you that speak your language.
Patient-Centric
Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.
How It Works
Finding the right support group is simple. We've made it easy for you.
Search Your Condition
Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.
Explore Communities
Review detailed profiles of advocacy groups, including their mission, resources, and contact info.
Connect & Get Support
Reach out directly to join communities, access resources, or get involved with groups that feel right for you.
Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
Melanoma UK
At Melanoma UK, we believe it is vital to proactively use evidence in our advocacy work. An increasing proportion of patients are highly sophisticated in their research and understanding of evidence, and we are matching this movement. Examples include participation in health technology appraisal meetings (NICE and SMC), presenting clinically validated information on our website, authoring publications, engaging with our own panel of medical experts, and supporting patient-centric initiatives. Ultimately, all these initiatives are designed to benefit and support patients, which has been Melanoma UK's mission since its foundation.
Aplastic Anemia & Myelodysplasia Association of Canada
AAMAC funds research into bone marrow failure diseases such as aplastic anemia, PNH and MDS. The organization provides peer-to-peer support via telephone and email, educational materials, quarterly newsletters, and local support group meetings in various cities including Ottawa, London, Hamilton, Edmonton, Quebec, and Toronto. They also offer resources such as presentations, newsletters, articles, and emergency room cards. The organization is involved in clinical trials, with current trials conducted at Juravinski Cancer Centre, Princess Margaret Hospital, and Odette Cancer Centre. They engage in advocacy activities, provide patient education, and maintain a website with extensive resources.
Chromosome 18 Europe
Chromosome 18 Registry and Research Society (Europe) is a charitable organization (Charity Number SC040399) associated with the Chromosome 18 Registry and Research Society. It facilitates a European community for families, friends, and members affected by Chromosome 18-related conditions, coordinating governance through a Management Committee and communicating developments ahead of its Annual General Meeting. The event described on this page is an informal, family-friendly gathering at the Glasgow Science Centre intended to connect attendees, share experiences, and discuss the organisation’s future direction, with feedback invited ahead of the next AGM. The site notes an international component, including a visit by several families from the US Chromosome 18 Registry and Research Society to Scotland.
VHL UK/Ireland
VHL UK / Ireland aims to raise funds via fundraising and donations for research, provide information and support for those affected and raise awareness. Registered charity in England and Wales 1160381, and Ireland 20101039. Charity Trust No: CT54346.
DKMS Foundation
DKMS is a patient-focused organization dedicated to fighting blood cancer through stem cell donation, patient support, and advocacy. It operates in the UK and collaborates with various partners to facilitate blood stem cell transplants, provide patient support services, and promote awareness campaigns. The organization maintains a registry of donors, offers educational resources, and engages in research collaborations to improve treatment outcomes. DKMS also advocates for policy changes to enhance donor registration and access to treatments. It is involved in clinical trial support and works with regulatory bodies to ensure compliance and advance medical research. The organization is committed to increasing diversity in donor registries and supporting patients throughout their treatment journey.
Epilepsy Sparks
Epilepsy Sparks is a platform providing information, research, and resources related to epilepsy, neurology, neuroscience, and genetics. It aims to support individuals affected by epilepsy and related neurological conditions through education, research involvement, and advocacy. The organization is part of Media Evolution Ltd, based in London, UK. It offers various resources including facts, glossaries, research projects, and conferences. The website emphasizes that information is not a substitute for personal medical advice and encourages consultation with qualified clinicians.
The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
Start Your Journey
Take the first step toward connection and support. Search for patient groups that match your needs today.
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