Helping patients find information when they are discovering their disease
Join our members in finding the resources and support you need to navigate your health journey.
Featured Support Groups
Connect with these highly rated patient advocacy groups that are making a difference in their communities
Young Epilepsy
Children and young people with epilepsy have a right to be heard. We stand with them. Childhood epilepsy is frightening, isolating and often a misunderstood condition. We work with children and young people with epilepsy, to ensure their voices are heard and their rights protected. We campaign for children’s rights. We deliver health services and research that improve diagnosis and treatments. We support children and young people throughout school, college, and university. We provide information, friendly advice, and practical help for living everyday life.
It's in the Bag
We provide hands-on support for men with testicular cancer in the South-West, as well as raising awareness of the disease across the region and beyond. It’s in the Bag is run by a group of testicular cancer survivors with support from specialist NHS staff. We have three simple aims: Support Being diagnosed with testicular cancer and going through treatment is a huge challenge – physically, mentally and emotionally. We provide a range of activities and initiatives to help men through this tough time. Awareness We teach men the importance of checking their balls regularly and taking any issues straight to their GP. Spreading this knowledge promotes earlier diagnosis, which often means simpler, more effective treatment and better chances of a cure. Survival With UK cure rates for testicular cancer running above 98%, we focus on survival – helping guys tackle the emotional and practical impact of cancer, both during treatment and beyond.
EGFR Positive UK
EGFR Positive UK is a charity dedicated to empowering patients diagnosed with EGFR mutation positive Non-Small Cell Lung Cancer (NSCLC), primarily at Stage 4. The organization aims to inform and involve patients in their treatment decisions, drawing on the European Cancer Organisation’s Code of Cancer Practice. It provides resources, support, and advocacy for individuals affected by EGFR+ lung cancer, including educational materials, patient support services, and information about treatment options. EGFR Positive UK also engages in research dissemination, policy advocacy, and community support activities. The organization is a member of Lung Cancer Europe and collaborates with various UK and international lung cancer organizations. It offers conferences, campaigns, and a good practice guide to improve patient care and outcomes.
Smile with Shiv
Raise awareness of Duchenne Muscular Dystrophy Raise as much money as possible so it can be given to those working to save Shiv’s life and thousands of other children with this horrific condition Work with the Duchenne community to ensure we have access to potential treatments as early as possible
OUTpatients
<p>Live Through This exists to support and advocate for our Lesbian, Gay, Bisexual, Transgender, Intersex and Queer communities when they are affected by cancer. Our goal is to help patients, survivors, partners and caregivers feel welcome and supported in cancer services. Through peer support, education, and bespoke resource production, it is our mission to transform cancer care into a more inclusive environment for everyone.</p>
Action Duchenne
Action Duchenne has a very clear vision: a world where lives are no longer limited by Duchenne muscular dystrophy. We have three core objectives and are proud to spend 87p in every £1 raised on our charitable activities: Developing effective treatments for all by funding research, supporting clinical trials and campaigning for access. Building a community by uniting and supporting families, educating about Duchenne and raising the profile of the condition. Striving for a more inclusive society promoting the importance of human equality, day to day acceptance of disability and accessibility. While we hope that research and clinical trials will one day lead to a treatment, or cure, for Duchenne, we believe it is vital to support families living with the condition today. We support families from diagnosis through their whole Duchenne journey.