Supporting patients worldwide

Helping patients find information when they are discovering their disease

Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.

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How It Works

Finding the right support group is simple. We've made it easy for you.

1

Search Your Condition

Type in your health condition or diagnosis. Our smart search understands medical terms and common names.

2

Browse Support Groups

Explore patient groups, advocacy organizations, and communities. Filter by location, language, or focus area.

3

Connect & Get Support

Reach out directly to groups that feel right for you. Join communities where people understand what you're going through.

Connect With Support Groups

Discover welcoming communities where people share experiences, offer support, and provide valuable resources

Pancreatic Cancer UK

Pancreatic Cancer UK

Pancreatic Cancer UK is a charity dedicated to providing information, support, and advocacy for individuals affected by pancreatic cancer. They offer a range of publications, educational resources, and support services to help patients, families, and healthcare professionals. The organization actively engages in advocacy activities to influence policy and improve patient care. They collaborate with healthcare providers, researchers, and industry partners to advance research and clinical trials. Their mission is to improve outcomes and quality of life for people affected by pancreatic cancer through education, support, and advocacy. Pancreatic Cancer UK is a charity dedicated to supporting people affected by pancreatic cancer, funding research, and campaigning for change. They provide information, support services, and advocate for early detection and better treatment options. The organization also funds research projects into early detection and treatments, collaborates with research institutions, and engages in policy advocacy. They operate a support line, publish educational resources, and run campaigns to raise awareness. Their activities include supporting patients and families, funding research, influencing policy, and collaborating with healthcare professionals and researchers. They have a strong focus on improving outcomes for pancreatic cancer patients through research, advocacy, and support.

Leukaemia Care

Leukaemia Care

Leukaemia Care is the UK’s leading leukaemia charity. For over 50 years, we have been dedicated to ensuring that everyone affected receives the best possible diagnosis, information, advice, treatment and support.

Jordan's Guardian Angels

Jordan's Guardian Angels

Jordan's Guardian Angels is a public charity exempt from Federal Income Tax as an organization described in Section 501 (c)(3) of the Internal Revenue Code, EIN 90-1022228. Contributions to Jordan’s Guardian Angels are tax deductible to the fullest extent allowed by law. No goods or services were provided in consideration for the contributions except as reported above. It is dedicated to supporting research and providing resources for families affected by Jordan's Syndrome, including research updates, family support, advocacy, and community building. The organization also collaborates with research institutions and participates in advocacy efforts to promote awareness and policy change for rare diseases.

HBA Support

HBA Support

We are a new and growing, patient-focused organisation. Hereditary Brain Aneurysm Support (HBA Support) aims to support and inform people and families living with familial brain aneurysms or those who may be at risk. We will also raise awareness of the condition as a rare condition to improve and save lives. Working with families and clinicians alike, we will help advocate for improved support, better care and more research into this hereditary condition. HBA Support was set up in 2020 by Rebecca and Emma Middleton. After losing their mum and grandmother to brain aneurysms, Rebecca went through her own battle for diagnosis and subsequent treatment for a right MCA brain aneurysm.

Osteogenesis Imperfecta Foundation

Osteogenesis Imperfecta Foundation

The mission of the OI Foundation is to improve the quality of life for those living with osteogenesis imperfecta through research, education, awareness and mutual support. The Osteogenesis Imperfecta Foundation, Inc., is a registered 501(c)(3) non-profit organization. Tax ID: 23-7076021. Information on this website may be reproduced provided a full citation of the source is given.

Annabelle's Challenge

Annabelle's Challenge

Annabelle's Challenge is a charity focused on supporting individuals affected by vascular Ehlers-Danlos syndrome (vEDS). The organization provides support programs, awareness campaigns, research funding, and professional guidance. It aims to improve quality of life for patients and families, promote research and medical understanding, and advocate for better healthcare and support services. The charity also hosts conferences, supports patient stories, and collaborates with NHS services and other professional organizations to advance knowledge and care for vEDS. Annabelle's Challenge is a patient advocacy organization dedicated to supporting individuals with vascular Ehlers-Danlos syndrome (vEDS). It provides resources, support groups, educational materials, and advocacy for patients and families affected by vEDS. The organization aims to improve awareness, facilitate research, and enhance patient care through collaboration with healthcare professionals and the community. It offers a helpline, educational resources, emergency preparedness tools, and opportunities for involvement in research and outreach activities. Annabelle's Challenge also promotes self-advocacy, mental health support, and access to medical information to empower patients in managing their condition.

You're Not Alone

Thousands of people have found hope, information, and friendship through patient support groups

Shared Experiences

Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.

Practical Information

Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.

Emotional Support

Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.

Advocacy & Awareness

Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.

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