Find Your Patient Support Community
Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
Why Use Phormulate?
Verified Communities
We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.
Global Reach
Access support groups from around the world, or find local communities near you that speak your language.
Patient-Centric
Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.
How It Works
Finding the right support group is simple. We've made it easy for you.
Search Your Condition
Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.
Explore Communities
Review detailed profiles of advocacy groups, including their mission, resources, and contact info.
Connect & Get Support
Reach out directly to join communities, access resources, or get involved with groups that feel right for you.
Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
Action Kidney Cancer
<p>The United Kingdom’s only patient-led kidney cancer charity</p> Action Kidney Cancer is the UK’s largest and most active patient-led kidney cancer charity. It provides support, information, and a caring, knowledgeable community for patients, survivors, and those affected by kidney cancer. The organization offers a helpline, patient support forum, community map, patient groups, and patient information days; hosts educational resources such as essential guides to kidney cancer, information on treatments, help sheets, and materials to support shared decision-making; and facilitates campaigns, fundraising, and involvement in advocacy. It is a registered charity in England, Wales, and Scotland, with headquarters in Manchester, United Kingdom, and maintains partnerships and resources to assist kidney cancer patients and families, including online and in-person programs.
Balls To Cancer
Since 2011 Balls to Cancer has been there to support sufferers and families dealing with cancer. We host many fundraising events and awareness campaigns with many famous faces to help bring awareness to male cancers. Balls To Cancer is a UK-based charitable organization established in 2011 that supports sufferers and families dealing with cancer. It hosts fundraising events and runs awareness campaigns, often featuring famous faces, to raise awareness of male cancers.
Brain Tumour Research Campaign
Brain Tumour Research Campaign (BTRC) is a UK-based charity dedicated to funding and accelerating brain tumour research. Our mission is to improve outcomes for people affected by brain tumours by supporting high-quality research, raising awareness, and enabling collaboration among researchers, clinicians, patients, and supporters. We fund research grants and collaborations, publish research outputs, run campaigns and educational resources, and involve donors through fundraising and sponsorship to ensure that donations support research projects. The organization operates a Research program with collaborations and a publications portfolio that highlights papers, abstracts, posters, and presentations facilitated by its grants.
It's in the Bag Cancer Support
It's in the Bag is a charity dedicated to supporting men diagnosed with testicular cancer through awareness, support services, fundraising, and survivor programs. They organize events like Test Fest and The Testicular Ball to raise funds and awareness. The organization provides educational resources, support lines, survivor toolkit afternoons, and collaborates with NHS hospitals and other charities. They focus on early detection, survival, and empowering survivors. Their activities include campaigning for regular self-checks, providing information packs, and running awareness campaigns such as 'Don't Bottle It' and 'Match Fit'. They have a strong social media presence and partnerships with Bristol-based companies and national sponsors. The charity is registered with the Charity Commission, operates mainly in the UK, and has a dedicated team of staff and volunteers. Their mission is to save lives through early detection and to improve the quality of life for those affected by testicular cancer.
Mesothelioma UK
Mesothelioma UK is a patient advocacy group dedicated to supporting people with mesothelioma, an asbestos-related cancer. They provide information, support, help with benefits or compensation, and access to specialist nurses for mesothelioma patients and their families in the UK.
GIST Cancer UK
GIST Cancer UK is a registered charity in England and Wales (1129219). It provides confidential support for people living with GIST cancer and their loved ones. The organization offers various resources including publications, support groups, helpline, and patient support activities. It collaborates with GIST specialists and has a Medical Advisory Board. The organization is involved in patient advocacy, education, and research support. It maintains a website with information on treatment, side effects, and patient stories. The physical address is 3 Phillips Grove, Yatton Keynell, Chippenham, Wiltshire N14 7FA. Contact email: admin@gistcancer.org.uk. Phone: 0300 400 0000. It is active on social media platforms including Facebook, YouTube, Instagram, LinkedIn, and Twitter.
The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
Start Your Journey
Take the first step toward connection and support. Search for patient groups that match your needs today.
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