Helping patients find information when they are discovering their disease
Join our members in finding the resources and support you need to navigate your health journey.
Featured Support Groups
Connect with these highly rated patient advocacy groups that are making a difference in their communities
OUTpatients
<p>Live Through This exists to support and advocate for our Lesbian, Gay, Bisexual, Transgender, Intersex and Queer communities when they are affected by cancer. Our goal is to help patients, survivors, partners and caregivers feel welcome and supported in cancer services. Through peer support, education, and bespoke resource production, it is our mission to transform cancer care into a more inclusive environment for everyone.</p>
CLL Support
Welcome to CLL Support, a patient – led UK charity. Our mission is to support and empower Chronic Lymphocytic Leukaemia (CLL) patients, and Small Lymphocytic Leukaemia (SLL) patients, their families and supporters through education and access to reliable, relevant and current information. We also represent CLL patients in discussions with government, pharmaceutical companies, other leukaemia charities and the National Institute for Care and Health Excellence (NICE). Our charity was founded in 2004 by patients with Chronic Lymphocytic Leukaemia (CLL) and their partners. It continues to be run by volunteers, all of whom have been personally affected by CLL or Small Lymphocytic Lymphoma (SLL). CLL and SLL are slightly different forms of the same disease and are managed in the same way. Currently, we have more than 3,000 members.
Pancare Foundation
Pancare Foundation is a leading Australian charity dedicated to fighting upper gastrointestinal (GI) cancers, including pancreatic, liver, stomach, biliary, and oesophageal cancers. The foundation provides comprehensive support, information, and resources to patients and their families, focusing on improving quality of life through practical, emotional, and physical wellbeing programs. Key services include the PanSupport Helpline, support groups, and a wide array of educational materials such as information books, fact sheets, and videos covering diagnosis, treatment options, and living well with cancer. Pancare Foundation also actively funds vital cancer research, promotes clinical trial awareness, and maintains patient registries like the PURPLE Translational Registry, aiming to advance understanding and treatment of these cancers. They also engage in advocacy to improve patient care and outcomes.
Childhood Interstitial Lung Disease Foundation
The Child Lung Foundation is a charity supporting children affected by childhood Interstitial Lung Disease (chILD). Established in 2010, it provides resources, support groups, and promotes research development. The organization aims to improve diagnosis, treatment, and quality of life for children with chILD, and offers educational resources, patient support services, and advocacy activities. It collaborates with medical professionals, researchers, and patient families to advance understanding and care of rare pediatric lung diseases.
Independent Cancer Patients' Voice
Independent Cancer Patients' Voice (ICPV) is a charity registered by the Charity Commission for England and Wales. It focuses on patient advocacy, support, and engagement in cancer research. The organization aims to involve patients in research design, policy, and clinical trials, providing a platform for patient voices to influence cancer research and treatment. ICPV organizes courses, conferences, and advocacy activities to empower patients and improve cancer care through active participation and collaboration with researchers and clinicians.
UKATPA
The UK ATTR Amyloidosis Patients’ Association (UKATPA) is a charity that was founded in 2017 by a group of UK patients with transthyretin (TTR) systemic amyloidosis (ATTR). We are supported by the consultant physicians of the UK NHS National Amyloidosis Centre (NAC).