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Childhood Tumour Trust is a growing charity whose aim is to bring children, young people and their families affected by Neurofibromatosis type 1 (NF1) together, (be it virtually at the moment), provide online parental support, campaign for better care & earlier diagnosis and to liaise with schools over special educational support.
The Armenian Hematology Association (AHA) is a national society for specialists working in the field
Metabolic Support UK are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. Since its inception in 1981, our organisation has strived to support those in the rare community, expanding new-born screening, accelerating the development of orphan drugs, and acting instrumentally in establishing EURORDIS, ensuring people living with IMDs have the best quality of life possible. Moving forward, utilising our 10 year strategy we will continue to improve the lives of people living with Inherited Metabolic Disorders, and to work collaboratively with our key partners and supporters to ensure that we achieve this. Our strategy focuses on four main pillars: Indvidual Support Building Communities Empowerment Advocacy
We are a special type of cancer charity, founded and managed by cancer patients. As patients, we know it’s important to have access to the very best information and practical support. When you join our community of patients, carers, and their families, you are able to talk with others who truly understand how you feel. Kidney cancer is a devastating disease, and within our caring and supportive community you can share experiences and find information, comfort and friendship. It can make such a difference to know you do not have to face kidney cancer on your own.
