Rare Disease UK
We work on a variety of issues that families and individuals with genetic conditions face. We aim to provide information, support families and influence the services needed by these patients. We also work to add patient voice into debates that matter to our community. Our work falls into different categories: reproductive techniques, diagnosis, medical research, healthcare and delivery, access to treatments and living and education.
About Us
Contact Information
- Phone: 0300 124 0441
- Email: info@raredisease.org.uk
- Website: https://www.raredisease.org.uk/
Our Location
7 Blackhorse Ln, London E17 6DS, UKSocial Media
- Twitter/X: @https://twitter.com/GeneticAll_UK
- Facebook: https://www.facebook.com/GeneticAllianceUK/
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