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The NCBRS Worldwide Foundation is a nonprofit organization that aims to support and educate families, carers and professionals who work with them. Together we will work to promote awareness and understanding of the syndrome. We will advocate for scientific research that increases the medical knowledge of Nicolaides-Baraitser Syndrome and best treatments.
The MedicAlert Foundation first launched in Turlock, California, in 1956, before coming to the UK over 58 years ago. As the pioneers of medical IDs, we remain the only charity provider of life-saving medical ID services worldwide.
We work on a variety of issues that families and individuals with genetic conditions face. We aim to provide information, support families and influence the services needed by these patients. We also work to add patient voice into debates that matter to our community. Our work falls into different categories: reproductive techniques, diagnosis, medical research, healthcare and delivery, access to treatments and living and education.
We want bladder cancer to be recognised as a common cancer and to receive the acknowledgement, level of public awareness, improvements in treatments and medical research investment which it merits and which those with bladder cancer deserve. We want bladder cancer patients to have a voice and the support they and their families require.