Helping patients find information when they are discovering their disease
Join our members in finding the resources and support you need to navigate your health journey.
Featured Support Groups
Connect with these highly rated patient advocacy groups that are making a difference in their communities
Anthony Nolan
Anthony Nolan is the charity that makes lifesaving connections between patients in need and incredible strangers ready to donate their stem cells.
Cure For Claire West Midlands C.I.C.
We are a Community Interest Company that does exactly as it states, We benefit the community. Everything you see on this site has had hard work put into every part, we pay for the site and the upkeep ourselves, we produce all the information ourselves, we create all multimedia ourselves, we pay for continuous training ourselves.
International Gaucher Alliance
The IGA is a patient led international organisation that has become the ‘go to’ global voice for over 85% of the Gaucher community and has built its reputation through listening to and delivering outcomes that have impacted on patients and their carers’ lives.
Champ 1 Foundation
Our mission is to improve the lives of those affected by CHAMP1 through clinical research, effective treatments, public awareness, early detection, family support and patient advocacy.
Salivary Gland Cancer
We’re a charity for those with rare salivary gland cancers such as Adenoid Cystic Carcinoma. We are continuing to build an information and support network for people affected by, or treating, these conditions. We organise regular networking meetings. We give you opportunities to input into ground-breaking research projects. We’re working to improve access to the newest therapies. Having started with Adenoid Cystic Carcinoma initially, our scope has broadened to include other salivary gland cancers. We’re focused on patients and clinicians working together to drive research and increase knowledge.
Bowel Research UK
Bowel Research UK is funding life-changing research into bowel cancer and other bowel diseases. Every year over 16,000 people die from bowel cancer in the UK and over a million suffer from bowel disease. By researching cutting edge treatments and investing in the best science, we’re saving and improving people’s lives Bowel Research UK was founded in 2020 following a merger between two well-respected charities: Bowel & Cancer Research and Bowel Disease Research Foundation (BDRF). We’re the UK’s leading specialist bowel cancer and bowel disease research charity and our research is saving and improving lives.