Supporting patients worldwide

Find Your Patient Support Community

Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.

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People supporting each other in a healthcare setting

Why Use Phormulate?

Verified Communities

We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.

Global Reach

Access support groups from around the world, or find local communities near you that speak your language.

Patient-Centric

Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.

How It Works

Finding the right support group is simple. We've made it easy for you.

1

Search Your Condition

Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.

2

Explore Communities

Review detailed profiles of advocacy groups, including their mission, resources, and contact info.

3

Connect & Get Support

Reach out directly to join communities, access resources, or get involved with groups that feel right for you.

Featured Communities

Browse our curated list of patient advocacy groups and support networks making a difference today.

Cancer of Unknown Primary Foundation

Cancer of Unknown Primary Foundation

The Cancer of Unknown Primary Foundation is dedicated to research, education, and support for patients with cancer of unknown primary (CUP). It provides resources, guidelines, and a platform for patients, families, and healthcare professionals to improve diagnosis, treatment, and quality of life for CUP patients. The foundation advocates for increased research funding, awareness, and better clinical management of CUP. It also maintains a comprehensive website with articles, patient stories, and scientific publications to inform and support the CUP community.

CLL Support

CLL Support

Welcome to CLL Support, a patient – led UK charity. Our mission is to support and empower Chronic Lymphocytic Leukaemia (CLL) patients, and Small Lymphocytic Leukaemia (SLL) patients, their families and supporters through education and access to reliable, relevant and current information. We also represent CLL patients in discussions with government, pharmaceutical companies, other leukaemia charities and the National Institute for Care and Health Excellence (NICE). Our charity was founded in 2004 by patients with Chronic Lymphocytic Leukaemia (CLL) and their partners. It continues to be run by volunteers, all of whom have been personally affected by CLL or Small Lymphocytic Lymphoma (SLL). CLL and SLL are slightly different forms of the same disease and are managed in the same way. Currently, we have more than 3,000 members.

DKMS Foundation

DKMS Foundation

DKMS is a patient-focused organization dedicated to fighting blood cancer through stem cell donation, patient support, and advocacy. It operates in the UK and collaborates with various partners to facilitate blood stem cell transplants, provide patient support services, and promote awareness campaigns. The organization maintains a registry of donors, offers educational resources, and engages in research collaborations to improve treatment outcomes. DKMS also advocates for policy changes to enhance donor registration and access to treatments. It is involved in clinical trial support and works with regulatory bodies to ensure compliance and advance medical research. The organization is committed to increasing diversity in donor registries and supporting patients throughout their treatment journey.

Armenian Hematology Association

Armenian Hematology Association

The Armenian Hematology Association (AHA) is a national society for specialists working in the field

British Lymphology Society

British Lymphology Society

The British Lymphology Society is a dynamic and innovative body providing a strong professional voice and support for those involved in the care and treatment of people with lymphoedema and related lymphatic disorders, including lipoedema. The Society seeks to achieve high standards of care and equitable access to treatment across the UK and promotes early detection and intervention and, where appropriate, screening and prevention.

Muscle Help Foundation

Muscle Help Foundation

The Muscle Help Foundation (MHF) is a registered charity dedicated to transforming the lives of children and young adults living with Muscular Dystrophy through the delivery of Muscle Dreams — unique, life-changing experiences that foster hope, joy, and community. Established to support individuals affected by muscular dystrophy, MHF organizes and funds a variety of programs including Muscle Dreams, community outreach, and support services. The organization collaborates with healthcare providers, research institutions, and corporate partners to advance research, advocacy, and patient support. MHF's mission is to deliver 657 Muscle Dreams across the UK, each representing a life-changing experience for every muscle in the human body, empowering beneficiaries and their families. The foundation actively engages in advocacy campaigns, educational initiatives, and partnerships to raise awareness and improve quality of life for those with muscular dystrophy. With a dedicated team of staff, volunteers, and trustees, MHF strives to be a leader in the muscular dystrophy community, fostering hope, resilience, and inclusion.

The Power of Community

Navigating a health condition is easier when you have the right support. Here's what you can find.

Shared Experiences

Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.

Practical Information

Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.

Emotional Support

Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.

Advocacy & Awareness

Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.

Start Your Journey

Take the first step toward connection and support. Search for patient groups that match your needs today.

Start Your Search