Helping patients find information when they are discovering their disease
Join our members in finding the resources and support you need to navigate your health journey.
Featured Support Groups
Connect with these highly rated patient advocacy groups that are making a difference in their communities
Cure CLCN4
Cure CLCN4 is a registered charity in England and Wales (1190344). It focuses on providing resources, support, and research related to CLCN4-related neurodevelopmental disorder. The organization offers patient and family resources, research funding, and community engagement activities. It maintains a patient registry, conducts research, and collaborates with scientific and medical communities to advance understanding and treatment of CLCN4 conditions. The organization also engages in advocacy, education, and awareness campaigns to support affected families and promote scientific research.
Huntington's Disease Youth Organization
HDYO is the only organization who focus solely on supporting young people impacted by HD around the world. Will you help us? HDYO offers resources, peer support, and connects young people impacted by Huntington's Disease globally. They provide educational materials, support groups, and advocacy initiatives to improve the lives of affected individuals and their families. The organization also engages in research support and collaborates with various partners to enhance awareness and support services.
Colorectal Cancer Alliance
To empower a nation of allies who work with us to provide support for patients and families, caregivers, and survivors; to raise awareness of preventive measures; and inspire efforts to fund critical research.
Armenian Hematology Association
The Armenian Hematology Association (AHA) is a national society for specialists working in the field
Butterfly Thyroid Cancer Trust
Butterfly Thyroid Cancer Trust is the first national supporter of patients with Thyroid Cancer. As a group dedicated solely to the support of patients with Thyroid Cancer we can offer fellow thyroid cancer patients who wish to join us the following: Use of the dedicated helpline to speak to someone who has had the disease. E-mail and telephone contact with group members to share experiences A "buddy" to help you through the stages of surgery, Radioiodine treatment and follow up Access to reliable up-to-date written information about the disease Access to a group member in clinic at the Northern Centre for Cancer Care (NCCC), Freeman Hospital
Cancer Laryngectomee Trust
Our aim is to promote and assist the relief of all people in the UK who have had a laryngectomy