Helping patients find information when they are discovering their disease
Join our members in finding the resources and support you need to navigate your health journey.
Featured Support Groups
Connect with these highly rated patient advocacy groups that are making a difference in their communities
NCBRS Worldwide Foundation
The NCBRS Worldwide Foundation is a patient advocacy organization dedicated to supporting individuals with Nicolaides-Baraitser Syndrome (NCBRS) and their families. It provides resources, educational materials, and support networks to help families understand and manage the condition. The foundation also promotes research and awareness initiatives to advance understanding of NCBRS. It collaborates with medical professionals, researchers, and other organizations to improve patient care and facilitate research efforts. The foundation's activities include hosting conferences, providing informational resources, supporting patient registries, and engaging in advocacy to influence policy and funding for NCBRS research and support.
Epilepsy Sparks
Epilepsy Sparks is a platform providing information, research, and resources related to epilepsy, neurology, neuroscience, and genetics. It aims to support individuals affected by epilepsy and related neurological conditions through education, research involvement, and advocacy. The organization is part of Media Evolution Ltd, based in London, UK. It offers various resources including facts, glossaries, research projects, and conferences. The website emphasizes that information is not a substitute for personal medical advice and encourages consultation with qualified clinicians.
ACT for Cancer
ACT for Cancer is a registered charity in England and Wales with the registration number 1210147. Its office is located at Unit 3, 42 Orchard Road, London N6 5TR. The organization focuses on providing information and support related to cancer treatments, including innovative and off-label therapies, clinical trials, and patient decision-making. It aims to empower patients with trusted, doctor-reviewed information, facilitate clinician engagement in discussing non-standard treatment options, and support research into better cancer treatments. ACT for Cancer operates a comprehensive info hub that offers curated content on immunotherapies, genomic sequencing, clinical trials, and novel treatments. The organization also conducts qualitative research to understand the progress of patients pursuing innovative treatments and aims to improve treatments and quality of life for future patients.
Colorectal Cancer Alliance
To empower a nation of allies who work with us to provide support for patients and families, caregivers, and survivors; to raise awareness of preventive measures; and inspire efforts to fund critical research.
Guts UK Charity
Guts UK is the national charity for the digestive system. They provide expert patient information and support for over 40 digestive conditions and symptoms affecting the gut, liver, and pancreas. They fund life-changing medical research into the whole digestive system, work to raise awareness, and educate people about digestive systems through campaigns and events.
Cancer Research UK
Cancer Research UK is a leading cancer research and awareness organization based in the United Kingdom. It focuses on cancer prevention, early diagnosis, treatment, and support for patients. The organization conducts and funds research, provides educational resources, and advocates for policy changes to improve cancer outcomes. It operates in multiple countries, including the UK, and collaborates with healthcare professionals, researchers, and policymakers. The organization offers a wide range of programs, including public awareness campaigns, patient support services, and professional education. It actively engages in policy advocacy and regulatory discussions related to cancer research and treatment. The organization maintains a strong online presence through its website and social media channels, providing accessible information and resources to the public and healthcare providers.