Helping patients find information when they are discovering their disease
Join our members in finding the resources and support you need to navigate your health journey.
Featured Support Groups
Connect with these highly rated patient advocacy groups that are making a difference in their communities
Max Appeal
Max Appeal was founded by parents of children diagnosed with 22q11/DiGeorge Syndrome/VCFS (remove 22q11 deletion syndrome). We are a small national charity, run almost exclusively by a group of dedicated volunteers backed up with a knowledgeable panel of medical professionals. Max, who was the inspiration for our beginning had a short life but Max Appeal is a charity with a vibrant life of its own.
Angelman UK
AngelmanUK is a United Kingdom-based support group. The trustees are all volunteers with direct experience of Angelman Syndrome either as parents or relatives of children or adults with AS. We also have a panel of experts who are able to answer and advise on more complex questions. Many of these experts are recognised worldwide in their fields of expertise relating to Angelman Syndrome.
Baggy Trousers UK
BaggyTrousersUK is a cancer charity based in the North West of England, it was founded by Jack Broadley in 2014. After going through his own experience of testicular cancer at the age of 21, Jack decided to take on this challenge to embark on a journey that would inspire him to helping others that have been affected by the illness that he’d once had. Jack felt an inherent urge to make a difference in the lives of males affected by testicular cancer and that, with the charity being run by a survivor, he could get the message across to others by the telling of his experience.
International Gaucher Alliance
The IGA is a patient led international organisation that has become the ‘go to’ global voice for over 85% of the Gaucher community and has built its reputation through listening to and delivering outcomes that have impacted on patients and their carers’ lives.
OUTpatients
<p>Live Through This exists to support and advocate for our Lesbian, Gay, Bisexual, Transgender, Intersex and Queer communities when they are affected by cancer. Our goal is to help patients, survivors, partners and caregivers feel welcome and supported in cancer services. Through peer support, education, and bespoke resource production, it is our mission to transform cancer care into a more inclusive environment for everyone.</p>
PCB Foundation
The PBC Foundation is the only UK organisation exclusively dedicated to providing support and information to those affected by PBC. PBC (Primary Biliary Cholangitis) is a long-term, auto-immune condition which affects the liver.