Find Your Patient Support Community
Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
Why Use Phormulate?
Verified Communities
We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.
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Access support groups from around the world, or find local communities near you that speak your language.
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How It Works
Finding the right support group is simple. We've made it easy for you.
Search Your Condition
Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.
Explore Communities
Review detailed profiles of advocacy groups, including their mission, resources, and contact info.
Connect & Get Support
Reach out directly to join communities, access resources, or get involved with groups that feel right for you.
Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
Schinzel-Giedion Syndrome Foundation
The Schinzel-Giedion Syndrome Foundation is a registered UK charity (Registered Charity Number 1186327) established in 2019 by an international group of parents of children with Schinzel-Giedion Syndrome (SGS). Our foundation has been created to represent children with SGS and their families living all around the world. The Schinzel-Giedion Syndrome Foundation is a UK registered charity established in 2019 by an international group of parents of children with Schinzel-Giedion Syndrome (SGS). It aims to represent children with SGS and their families worldwide. The foundation is involved in research, advocacy, and support activities related to SGS. It collaborates with medical and scientific advisory boards, and maintains a registry and resources for families and professionals. The foundation also engages in public education, policy advocacy, and fundraising efforts. It provides educational materials, supports families, and promotes research into SGS, including genetic, clinical, and therapeutic studies. The foundation's activities include organizing conferences, publishing research, and fostering collaborations among researchers, clinicians, and families.
Bowel Cancer UK
We’re the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. Our vision is a future where nobody dies of the disease.
Mesothelioma UK
Mesothelioma UK is a patient advocacy group dedicated to supporting people with mesothelioma, an asbestos-related cancer. They provide information, support, help with benefits or compensation, and access to specialist nurses for mesothelioma patients and their families in the UK.
Muscle Help Foundation
The Muscle Help Foundation (MHF) is a registered charity dedicated to transforming the lives of children and young adults living with Muscular Dystrophy through the delivery of Muscle Dreams — unique, life-changing experiences that foster hope, joy, and community. Established to support individuals affected by muscular dystrophy, MHF organizes and funds a variety of programs including Muscle Dreams, community outreach, and support services. The organization collaborates with healthcare providers, research institutions, and corporate partners to advance research, advocacy, and patient support. MHF's mission is to deliver 657 Muscle Dreams across the UK, each representing a life-changing experience for every muscle in the human body, empowering beneficiaries and their families. The foundation actively engages in advocacy campaigns, educational initiatives, and partnerships to raise awareness and improve quality of life for those with muscular dystrophy. With a dedicated team of staff, volunteers, and trustees, MHF strives to be a leader in the muscular dystrophy community, fostering hope, resilience, and inclusion.
パンキャンジャパン
NPO法人パンキャンジャパンは、すい臓がん（膵臓がん）に関する啓発、研究支援、政策提言、患者支援など多岐にわたる活動を行う日本の非営利団体です。2006年に設立され、膵臓がん撲滅を目指して、患者や家族、医療関係者と連携しながら情報提供や支援を展開しています。研究支援や啓発活動、政策提言を通じて、膵臓がんの早期診断・治療法の普及と患者のQOL向上に努めており、国内外の医療・研究機関とも連携しています。
Its On The Ball
It's on the Ball is a UK-based registered charity (charity number 1155510) focused on testicular cancer awareness, information, support, and fundraising. The organization provides contact channels for enquiries and support (email info@itsontheball.org and phone 01603 511707) and operates from Norwich, Norfolk, United Kingdom. Core activities include awareness campaigns, patient support resources, fundraising for change, volunteering opportunities, and storytelling/community engagement through its site sections (Testicular Cancer resources, Get Involved, Stories, News). It's On The Ball is a UK-based registered charity (charity number 1155510) focused on testicular cancer awareness, education, and patient support. The organization describes itself as working to raise awareness of testicular cancer and the importance of monthly self-checks, deliver awareness talks to schools, colleges, businesses and organisations around East Anglia, provide patient education resources (leaflets and information), and fundraise to support patients through awareness campaigns, support packs, and grants. Core activities include awareness campaigns (Awareness), patient support (Support), and fundraising initiatives (Fundraising). The site emphasizes patient advocacy through stories, support resources, and community events, including BeerPush fundraising campaigns and other community events. The organization invites donations, volunteers, and corporate support and maintains an active newsletter and events calendar. The content reflects ongoing engagement with the public and communities to improve early detection and patient support related to testicular cancer.
The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
Start Your Journey
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