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Helping patients find information when they are discovering their disease

Join our members in finding the resources and support you need to navigate your health journey.

1.
Discover Your Condition
Enter your specific health condition, like "diabetes" or "cancer," into our search bar to kickstart your journey to valuable resources and support.
2.
Explore Relevant Resources
Explore a curated list of patient groups, articles, and educational materials related to your condition.
3.
Connect with Support
Connect with patient communities and groups to find support and information for your condition.

Featured Support Groups

Connect with these highly rated patient advocacy groups that are making a difference in their communities

Medics 4 Rare Diseases

Medics 4 Rare Diseases

M4RD is advocating for the inclusion of dedicated Rare Disease training to be added to medical education curricula. But in the meantime you can make a difference by following M4RD and receiving your training from us.

Angelman UK

Angelman UK

AngelmanUK is a United Kingdom-based support group. The trustees are all volunteers with direct experience of Angelman Syndrome either as parents or relatives of children or adults with AS. We also have a panel of experts who are able to answer and advise on more complex questions. Many of these experts are recognised worldwide in their fields of expertise relating to Angelman Syndrome.

Cancer Support UK

Cancer Support UK

We provide practical and emotional support to people with cancer, during and after the treatment period. We support people with all kinds of cancer across the UK. Our services are designed and delivered by people who have experienced cancer themselves – to improve the experience of others.

CLL Support

CLL Support

Welcome to CLL Support, a patient – led UK charity. Our mission is to support and empower Chronic Lymphocytic Leukaemia (CLL) patients, and Small Lymphocytic Leukaemia (SLL) patients, their families and supporters through education and access to reliable, relevant and current information. We also represent CLL patients in discussions with government, pharmaceutical companies, other leukaemia charities and the National Institute for Care and Health Excellence (NICE). Our charity was founded in 2004 by patients with Chronic Lymphocytic Leukaemia (CLL) and their partners. It continues to be run by volunteers, all of whom have been personally affected by CLL or Small Lymphocytic Lymphoma (SLL). CLL and SLL are slightly different forms of the same disease and are managed in the same way. Currently, we have more than 3,000 members.

Vasculitis UK

Vasculitis UK

Everything is to be found here about Vasculitis UK, the charity: our aims, goals and objectives, the history, the people who run it, our finances, how you can join and how you can support and be involved in running Vasculitis UK. There is a section here on fundraising and on setting up a local vasculitis support group.

MDS UK

MDS UK

MDS UK Patient Support Group is a charity started in 2008 to raise awareness and offer support and information to patients and families affected by Myelodysplastic Syndromes & CMML . We also campaign to make treatments available and to increase Quality of Life (Q0L) for MDS & CMML patients. If you have MDS or CMML, or someone in your family has, you're in the right place.