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Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
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Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
Action Kidney Cancer
<p>The United Kingdom’s only patient-led kidney cancer charity</p> Action Kidney Cancer is the UK’s largest and most active patient-led kidney cancer charity. It provides support, information, and a caring, knowledgeable community for patients, survivors, and those affected by kidney cancer. The organization offers a helpline, patient support forum, community map, patient groups, and patient information days; hosts educational resources such as essential guides to kidney cancer, information on treatments, help sheets, and materials to support shared decision-making; and facilitates campaigns, fundraising, and involvement in advocacy. It is a registered charity in England, Wales, and Scotland, with headquarters in Manchester, United Kingdom, and maintains partnerships and resources to assist kidney cancer patients and families, including online and in-person programs.
Sturge Weber UK
Sturge Weber UK is dedicated to improving the lives of those affected by Sturge Weber Syndrome through providing strength and support, promoting awareness both publicly and professionally, promoting medical research, creating a supportive community, and creating a collaborative approach in the level of care individuals receive throughout their life.
Breakthrough Cancer Research
People believe that the worst day they or a loved one will have is hearing a cancer diagnosis. However, this is not the worst day. The worst day is when the doctor tells them there is no hope. They have tried everything. There is nothing more they can do. The cure for their cancer does not exist. Breakthrough Cancer Research (Breakthrough) is working hard to make sure our family, friends and communities across Ireland have access to the best treatments for cancer and never have to hear the words, there is no hope. Breakthrough Cancer Research is an Irish medical research charity focused on cancer. We work to significantly impact the number of children and adults who can survive this disease. We invest in world-class research in Ireland to impact the quality of life for people with cancer and save lives. We are particularly focused on improving outcomes for those cancers, which are poorly served by current treatment options. Our focus is on: Funding world-class cancer research into poor prognosis cancers, which are poorly served by current treatment options Facilitating collaboration between scientists and clinicians across Ireland and Internationally Accelerating the translation of lab discoveries into new effective treatments for people with cancer.
The Myeloma, Lymphoma & Leukaemia Foundation of Barbados
<p>Originally founded in February 2002 as the Myeloma Foundation and Support Group of Barbados, we broadened our scope in May of that year to include Lymphoma and Leukaemia and became known as The Myeloma, Lymphoma and Leukaemia Foundation of Barbados. We are registered as Charity #579. The Foundation finds its genesis in the fact that the experiences and needs of persons afflicted with blood-related cancers are extremely complex and far more unique than those afflicted with more well-known cancers.</p><p>Our mission is to provide comprehensive support to persons suffering from Myeloma, Lymphoma, Leukaemia and other blood-related disorders. We are based in Barbados and therefore cater primarily to Barbadians, although all are welcome.</p><p>The Main Objectives of the Foundation include:</p><ul><li><strong>Support:</strong> To provide a support network for sufferers of blood-related cancers and their families.</li><li><strong>Lobbying:</strong> To act as an effective lobbying agent on behalf of such persons to influence government policy on matters pertaining to blood-related cancers.</li><li><strong>Education:</strong> To educate the Barbadian public about blood-related cancers.</li></ul>
Hrvatska udruga leukemija i limfomi (HULL)
<p>The association works with the aim of helping patients suffering from hematological diseases, developing new research programs and treatment methods, and to this end undertakes the following activities:</p><ul><li>Organizes the treatment of patients suffering from leukemia, lymphoma, and related diseases.</li><li>Collects donations, and develops and implements programs to help patients suffering from leukemia, lymphoma, and related diseases.</li><li>Encourages new methods of treatment, and limits professional and financial assistance for these programs.</li><li>Supports programs to help patients and their families.</li><li>Supports research work in the field of etiology, therapy, and treatment of leukemia, lymphoma, and related hematological diseases.</li><li>Develops unrelated bone marrow transplantation programs in the Republic of Croatia.</li><li>Organizes seminars and consultations, and distributes information from these meetings to health and scientific institutions.</li></ul>
Mind Over Cancer
Mind Over Cancer is a charity that supports the mental health of young people diagnosed with cancer between the ages of 0 and 29, as well as their families and support networks. It aims to promote and protect mental health by providing or assisting in the provision of counselling services and mental health support programs. The organization is made up of experts in cancer care and mental health who identified a lack of mental health provisions for young cancer patients. It offers mental health support, counselling, drop-in services, support programs, and online support groups across East Anglia. The charity also engages in advocacy, fundraising, and community support activities. It has a registered charity number 1192034 and is committed to supporting young people and their families through their cancer journey.
The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
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