Find Your Patient Support Community
Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
Why Use Phormulate?
Verified Communities
We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.
Global Reach
Access support groups from around the world, or find local communities near you that speak your language.
Patient-Centric
Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.
How It Works
Finding the right support group is simple. We've made it easy for you.
Search Your Condition
Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.
Explore Communities
Review detailed profiles of advocacy groups, including their mission, resources, and contact info.
Connect & Get Support
Reach out directly to join communities, access resources, or get involved with groups that feel right for you.
Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
Hope for Hypothalamic Hamartomas
Hope for Hypothalamic Hamartomas is dedicated to supporting research into hypothalamic hamartomas (HH), a rare brain disorder characterized by lesions in the ventral hypothalamic region. The organization funds and awards research grants, facilitates international symposia, and collaborates with leading medical and research institutions worldwide. Their research initiatives include genomic profiling, functional MRI studies, animal model development, and genetic research to better understand HH etiology, diagnosis, and treatment options. They actively support scientific exchange through conferences and publish research articles. The organization also engages in advocacy, provides educational resources, and partners with medical professionals and institutions to advance HH research and treatment.
Baggy Trousers UK
<p>Baggy Trousers UK is a non-profit organisation saving lives by raising awareness of the signs and symptoms and providing vital support to those impacted by testicular cancer</p> Contact page for Baggy Trousers UK, a registered charity in England and Wales focused on Testicular Cancer Awareness. The site features a contact form, donation prompt, and social media channels. Charity No. 1160724. Baggy Trousers UK is a cancer charity based in the North West of England founded by Jack Broadley in 2014. Its aims are to (1) promote and protect the physical and mental health of sufferers of testicular cancer, (2) provide financial assistance, support, education and practical advice to those affected by testicular cancer, and (3) advance the education of the general public in all areas relating to testicular cancer. The organization delivers awareness talks and showcases awareness exhibitions/stands in public and corporate settings, distributing self-help materials (leaflets, posters and step-by-step checking cards). It provides financial and peer support to men directly affected by testicular cancer via telephone, email, social media and a monthly peer support group. Primary contact support includes a phone line and email for peer support, and the charity runs a monthly peer support group.
Glaucoma UK
Glaucoma UK is a charity dedicated to providing help and support to everyone living with glaucoma. They offer a helpline, support groups, a buddy scheme, and free resources like eye drop dispensing aids, booklets, and posters. The organization also funds sight-saving research into the detection, management, and treatment of glaucoma, and runs awareness campaigns like Glaucoma Awareness Week. They engage patients through initiatives like the Glaucoma Patient Voice Study to shape future care. Glaucoma UK is the operating name of the International Glaucoma Association. Glaucoma UK is the operating name of the International Glaucoma Association, a charity registered in England & Wales (No 274681) and in Scotland (No SC041550). It is dedicated to supporting people with glaucoma through information, support services, research funding, and advocacy. The organization provides educational resources, support groups, a helpline, and funds research projects. It also offers free resources such as booklets, posters, and dispensing aids to help patients manage their condition. Glaucoma UK actively engages in public awareness campaigns, promotes early diagnosis through routine eye tests, and collaborates with healthcare professionals and research institutions. The organization is committed to improving eye health and preventing sight loss from glaucoma. Glaucoma UK is a membership charity dedicated to ending preventable sight loss caused by glaucoma. They campaign to raise awareness for early detection and treatment, support individuals living with glaucoma by providing access to reliable help and resources, fund high-quality research into glaucoma prevention, diagnosis, treatment, and cure, and advocate for patients in policy, service development, and care delivery. The organization is governed by a Board of Trustees, including glaucoma specialists and individuals with firsthand experience of the condition. They operate a Clinical Advisory Panel of ophthalmology and optometry experts, and support research, patient support services, and public education initiatives. Their values include trust, ambition, determination, compassion, inclusion, integrity, collaboration, and empowerment. They have a registered office in Ashford, Kent, UK, and are registered charities in England & Wales and Scotland.
Pancare Foundation
Pancare Foundation is a leading Australian charity dedicated to fighting upper gastrointestinal (GI) cancers, including pancreatic, liver, stomach, biliary, and oesophageal cancers. The foundation provides comprehensive support, information, and resources to patients and their families, focusing on improving quality of life through practical, emotional, and physical wellbeing programs. Key services include the PanSupport Helpline, support groups, and a wide array of educational materials such as information books, fact sheets, and videos covering diagnosis, treatment options, and living well with cancer. Pancare Foundation also actively funds vital cancer research, promotes clinical trial awareness, and maintains patient registries like the PURPLE Translational Registry, aiming to advance understanding and treatment of these cancers. They also engage in advocacy to improve patient care and outcomes.
MPN Voice
MPN Voice is a registered charity focused on supporting individuals with myeloproliferative neoplasms (MPNs). Their activities include providing information, raising awareness, supporting patients through various programs, conducting research, and advocating for the MPN community. They offer educational resources, patient support services, and organize events and forums. They also engage in clinical research and trials, provide patient stories and testimonials, and maintain a strong online presence through their website and social media channels. As a charity, they are under the auspices of Guy's and St Thomas' Foundation, with registered charity number 1160316. MPN Voice is a registered charity under the auspices of Guy's and St Thomas' Foundation. It supports patients with myeloproliferative neoplasms (MPNs) through advocacy, education, support groups, research, and awareness campaigns. The organization provides patient education resources, hosts forums and events, and collaborates with healthcare professionals and research institutions. MPN Voice also engages in policy advocacy, clinical trial support, and fundraising activities to improve patient outcomes and quality of life. It maintains a website with extensive information on MPNs, treatments, and living with the condition, and actively promotes community engagement and patient empowerment.
British Lymphology Society
The British Lymphology Society is a dynamic and innovative body providing a strong professional voice and support for those involved in the care and treatment of people with lymphoedema and related lymphatic disorders, including lipoedema. The Society seeks to achieve high standards of care and equitable access to treatment across the UK and promotes early detection and intervention and, where appropriate, screening and prevention.
The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
Start Your Journey
Take the first step toward connection and support. Search for patient groups that match your needs today.
Start Your Search