Find Your Patient Support Community
Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
Why Use Phormulate?
Verified Communities
We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.
Global Reach
Access support groups from around the world, or find local communities near you that speak your language.
Patient-Centric
Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.
How It Works
Finding the right support group is simple. We've made it easy for you.
Search Your Condition
Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.
Explore Communities
Review detailed profiles of advocacy groups, including their mission, resources, and contact info.
Connect & Get Support
Reach out directly to join communities, access resources, or get involved with groups that feel right for you.
Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
Sturge Weber UK
Sturge Weber UK is dedicated to improving the lives of those affected by Sturge Weber Syndrome through providing strength and support, promoting awareness both publicly and professionally, promoting medical research, creating a supportive community, and creating a collaborative approach in the level of care individuals receive throughout their life.
Dravet Syndrome UK
Dravet Syndrome UK is a patient support organization dedicated to providing information, emotional support, and resources for families affected by Dravet Syndrome. They offer practical and emotional support, mental health support, resources and advice, financial grants, and support for families overseas. The organization also engages in research, advocacy, and professional collaboration to improve care and awareness of Dravet Syndrome. They maintain a website with extensive resources, including guides, leaflets, and information for healthcare professionals and families. The charity is based in Chesterfield, UK, with a charity number 1128289, and has a presence on social media platforms such as Twitter, Facebook, Instagram, LinkedIn, and YouTube.
Myeloma UK
Myeloma UK is a charity dedicated to improving the lives of people affected by myeloma through research, support, and education. It provides patient information, advocates for policy change, funds research, and offers support services including helplines, support groups, and educational resources. The organization collaborates with healthcare professionals and industry partners to enhance treatment and care for myeloma patients. It is involved in clinical trials, research publications, and maintains a website with extensive resources and community engagement initiatives. Myeloma UK is a registered charity No. SC026116, based at 22 Logie Mill, Beaverbank Business Park, Edinburgh, EH7 4HG, with contact number 0131 557 3332.
Australian Pancreatic Cancer Genome
The Australian Pancreatic Cancer Genome Initiative (APGI) is a global research enterprise of over 100 scientists, clinicians and allied health professionals involved in pancreatic cancer research and care. The APGI has mapped the genome of pancreatic cancer in a landmark effort as part of Australia’s contribution to the International Cancer Genome Consortium (ICGC). This fundamental understanding of the genetic underpinnings of Pancreatic Cancer will accelerate the evolution of pancreatic cancer care into the molecular age of oncology. The APGI’s world-class BioResource – biological samples coupled with comprehensive clinical and genomic data – is aiding research worldwide in ongoing discovery and development through quality research and strategic collaborations.
Armenian Hematology Association
The Armenian Hematology Association (AHA) is a national society for specialists working in the field
Asthma + Lung UK
Asthma + Lung UK is the nation's lung charity dedicated to transforming lung health in the UK. They provide support, advice, research, and campaigning to improve lung health and the ability to breathe freely for everyone. Their mission is to create a world where good lung health is a basic right enjoyed by all.
The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
Start Your Journey
Take the first step toward connection and support. Search for patient groups that match your needs today.
Start Your Search