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Featured Support Groups
Connect with these highly rated patient advocacy groups that are making a difference in their communities
Cancer Support UK
<p>We provide practical and emotional support to people with cancer, during and after the treatment period.</p><p>We support people with all kinds of cancer across the UK. Our services are designed and delivered by people who have experienced cancer themselves – to improve the experience of others.</p> Cancer Support UK is a UK-based charity dedicated to supporting cancer patients and their families throughout the cancer journey. It emphasizes emotional and practical support, including free Cancer Coach programs (peer group support, digital learning, and Focus Forwards workshops) for adults who have completed cancer treatment. The organization offers Cancer Kits and workplace training, signposting, and educational resources, and invites donations and involvement through volunteering and referrals. The site notes impact such as helping 4,952 people in 2020 and highlights storytelling and shared experiences to raise awareness of its services. Core activities include running Cancer Coach programs (peer groups online or by phone, digital learning, and focused workshops), providing educational resources and materials (Cancer Types, Signposting, Resources), offering cancer-related patient support services, and broader fundraising and outreach efforts.
Jeans for Genes
Jeans for Genes is the annual fundraising event for the genetic condition community. It organizes activities such as promoting fundraising events, providing educational materials, and supporting families affected by genetic conditions. The organization encourages participation through workplace, school, and community events, and offers resources like fundraising packs, wristbands, and promotional materials. It also engages with media and local press to raise awareness and supports fundraising through online shops, bank transfers, cheques, and digital platforms. The organization is involved in advocacy, education, and community support activities, aiming to fund research and support services for families affected by genetic conditions.
Oncoguia
<p>Oncoguia seeks to strengthen, encourage, and guide people living with cancer to face their challenges in the best way possible. We are a non-governmental organization (NGO) that works tirelessly to inform, support, and defend the rights of cancer patients. Our goal is to provide quality information and support to patients, their families, and the general public to improve their quality of life.</p>
The Ehlers Danlos Society
The Ehlers Danlos Society is a global organization dedicated to improving the lives of people with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). The society provides education, research funding, clinical resources, and advocacy to support patients, families, and healthcare professionals. It aims to increase awareness, promote diagnosis, and advance research to find better treatments and ultimately a cure for EDS and HSD. The society also offers support groups, patient stories, and community engagement initiatives to foster a strong network of individuals affected by these connective tissue disorders. The Ehlers Danlos Society is a patient advocacy organization dedicated to improving the lives of individuals with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). The organization focuses on research, education, support, and advocacy to raise awareness and improve diagnosis and management of these connective tissue disorders. It offers patient support programs, educational resources, and promotes research collaborations. The Society also engages in policy advocacy and provides a platform for patient stories and community engagement. It operates globally, with a focus on patient-centered initiatives, and collaborates with healthcare professionals, researchers, and other organizations to advance understanding and treatment of EDS and HSD.
Joining Jack
Joining Jack was officially launched with the Charity Commission by Alex and Andy Johnson, the proud parents of Jack, in July 2012 – less than nine months after their world fell apart when their son, three months short of his 4th birthday, was diagnosed with Duchenne Muscular Dystrophy, an incurable muscle-wasting condition for there is currently no cure. In 2022 Joining Jack celebrates 10 years of campaigning, fundraising, lobbying and investing in research to bring the best possible treatments with the best possible outcomes for ALL boys living with Duchenne.
Mummy's Star
Mummy's Star is a registered charity providing support for women diagnosed with cancer during pregnancy, within 12 months of giving birth, or experiencing baby loss during pregnancy or in the 12 months prior. They offer emotional, financial, practical, and end-of-life support, along with educational resources, advocacy campaigns, and professional support for healthcare providers. The organization also engages in research, policy advocacy, and collaborates with various partners. They operate in the UK and have a broad range of programs and services aimed at supporting patients and families affected by cancer in pregnancy.