Find Your Patient Support Community
Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
Why Use Phormulate?
Verified Communities
We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.
Global Reach
Access support groups from around the world, or find local communities near you that speak your language.
Patient-Centric
Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.
How It Works
Finding the right support group is simple. We've made it easy for you.
Search Your Condition
Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.
Explore Communities
Review detailed profiles of advocacy groups, including their mission, resources, and contact info.
Connect & Get Support
Reach out directly to join communities, access resources, or get involved with groups that feel right for you.
Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
Melanoma UK
At Melanoma UK, we believe it is vital to proactively use evidence in our advocacy work. An increasing proportion of patients are highly sophisticated in their research and understanding of evidence, and we are matching this movement. Examples include participation in health technology appraisal meetings (NICE and SMC), presenting clinically validated information on our website, authoring publications, engaging with our own panel of medical experts, and supporting patient-centric initiatives. Ultimately, all these initiatives are designed to benefit and support patients, which has been Melanoma UK's mission since its foundation.
Max Appeal
Resource Library page for Max Appeal. Provides access to all of Max Appeal's literature, professional papers, and useful web pages and links around the world. Encourages participation in or understanding current research into 22q; directs visitors to Library, Research, and Useful Links sections to learn about 22q and related resources.
MDS UK Patient Support Group
MDS UK Patient Support Group provides support, information, and advocacy for individuals in the UK diagnosed with Myelodysplastic Syndromes (MDS) or Chronic Myelomonocytic Leukaemia (CMML), and their caregivers. They offer online support meetings, educational resources, real patient stories, and facilitate access to specialist centers. The organization also engages in fundraising activities to raise awareness, advocate for improved treatments, and drive research into MDS and CMML. MDS UK Patient Support Group provides comprehensive information, support, and resources for patients, families, and caregivers affected by Myelodysplastic Syndromes (MDS). They offer educational materials, patient booklets, factsheets, support meetings, and guidance on living with MDS. The organization also engages in advocacy, supports clinical trials, and provides resources for traveling and managing the disease. Their activities include raising awareness, patient education, and supporting research collaborations. They are a registered charity in the UK, with contact details including a phone number and email, and maintain a website with extensive patient resources.
Muscle Help Foundation
The Muscle Help Foundation (MHF) is a registered charity dedicated to transforming the lives of children and young adults living with Muscular Dystrophy through the delivery of Muscle Dreams — unique, life-changing experiences that foster hope, joy, and community. Established to support individuals affected by muscular dystrophy, MHF organizes and funds a variety of programs including Muscle Dreams, community outreach, and support services. The organization collaborates with healthcare providers, research institutions, and corporate partners to advance research, advocacy, and patient support. MHF's mission is to deliver 657 Muscle Dreams across the UK, each representing a life-changing experience for every muscle in the human body, empowering beneficiaries and their families. The foundation actively engages in advocacy campaigns, educational initiatives, and partnerships to raise awareness and improve quality of life for those with muscular dystrophy. With a dedicated team of staff, volunteers, and trustees, MHF strives to be a leader in the muscular dystrophy community, fostering hope, resilience, and inclusion.
Pankind Australian Pancreatic Cancer Foundation
PanKind Australian Pancreatic Cancer Foundation is dedicated to improving outcomes for individuals affected by pancreatic cancer through groundbreaking research, compassionate support, and advocacy. Their mission is to triple survival rates by 2030 and enhance quality of life. They offer resources such as educational booklets, clinical trial information, and support services. The organization engages in advocacy, awareness campaigns, and provides support groups. They collaborate with healthcare professionals and have a focus on pancreatic cancer research, genetic testing, clinical trials, and patient support programs. They maintain a website with extensive resources and actively participate in policy and research initiatives. They also promote fundraising, community engagement, and partnerships to further their mission.
Cure Mito Foundation
The Cure Mito Foundation is a patient-led advocacy organization focused on Leigh syndrome and other mitochondrial diseases. It unites the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures, operates the largest Leigh syndrome patient registry (400+ participants across 40+ countries), and provides resources and support to affected families worldwide.
The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
Start Your Journey
Take the first step toward connection and support. Search for patient groups that match your needs today.
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