Find Your Patient Support Community
Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
Why PatientGroups.ai?
Verified Communities
We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.
Global Reach
Access support groups from around the world, or find local communities near you that speak your language.
Patient-Centric
Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.
How It Works
Finding the right support group is simple. We've made it easy for you.
Search Your Condition
Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.
Explore Communities
Review detailed profiles of advocacy groups, including their mission, resources, and contact info.
Connect & Get Support
Reach out directly to join communities, access resources, or get involved with groups that feel right for you.
Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
It's in the Bag Cancer Support
It's in the Bag is a charity dedicated to supporting men diagnosed with testicular cancer through awareness, support services, fundraising, and survivor programs. They organize events like Test Fest and The Testicular Ball to raise funds and awareness. The organization provides educational resources, support lines, survivor toolkit afternoons, and collaborates with NHS hospitals and other charities. They focus on early detection, survival, and empowering survivors. Their activities include campaigning for regular self-checks, providing information packs, and running awareness campaigns such as 'Don't Bottle It' and 'Match Fit'. They have a strong social media presence and partnerships with Bristol-based companies and national sponsors. The charity is registered with the Charity Commission, operates mainly in the UK, and has a dedicated team of staff and volunteers. Their mission is to save lives through early detection and to improve the quality of life for those affected by testicular cancer.
Pembe Hanım
LL HakkımızdaKanser Toplumsal Bir SorundurPembe Hanım Kanserli hasta ve hasta yakınları tarafından kurulmuş, ticari amaç gütmeyen tam bağımsız bir sivil toplum kuruluşudur. Bir hasta derneği olan PH sağlık politikalarında hastaların sesini olmakta, kanser politikalarının oluşturulmasına katkıda bulunmaktadır. Bir Ulusal Kanser Enstitüsü kurulmasını hedefleyen, bilgiye erişimi önemseyen PH kanser hasta ve yakınlarına moral destek vermektedir.MisyonKanser hastası ve yakınlarının bilgiye erişimini sağlamak,moral destek vermek, yaşam kalitesini yükseltmek ve kanserin iyileşebilir bir hastalık olduğunu anlatmak.VizyonKanser hasta hakları savunuculuğu yapmak, sağlık politikalarında etkili olmak, kanser hastasını sorunların çözümünde ve sağlık politikalarında çözüm ortağı yapmak
Brain Tumour Research
We are the only national charity in the UK focused on finding a cure for all types of brain tumours through campaigning to increase the national investment in brain tumour research to £35 million per year, while fundraising to create a network of seven sustainable Brain Tumour Research Centres of Excellence across the UK.
UKATPA
The UK ATTR Amyloidosis Patients’ Association (UKATPA) is a charity that was founded in 2017 by a group of UK patients with transthyretin (TTR) systemic amyloidosis (ATTR). We are supported by the consultant physicians of the UK NHS National Amyloidosis Centre (NAC).
European Cancer Patient Coalition
The European Cancer Patient Coalition (ECPC) is a patient-led organization dedicated to representing and advocating for cancer patients across Europe. Its core activities include policy advocacy, research support, patient education, and promoting access to quality cancer care. ECPC engages in policy development, collaborates with European institutions, and runs various campaigns to improve cancer outcomes. The organization also provides resources and support to patients and caregivers, and actively participates in European health initiatives and research projects. ECPC aims to empower patients, influence health policy, and ensure that patient perspectives are integrated into cancer care and research.
Cure Mito Foundation
The Cure Mito Foundation is a patient-led advocacy organization focused on Leigh syndrome and other mitochondrial diseases. It unites the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures, operates the largest Leigh syndrome patient registry (400+ participants across 40+ countries), and provides resources and support to affected families worldwide.
The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
PatientGroups.co Podcast
Conversations with leaders, founders, and advocates driving change in the patient advocacy ecosystem.
Patient Group Spotlight: The Swallows with Chris Curtis
Featuring The Swallows
Chris Curtis shares his head and neck cancer journey, the mission behind The Swallows, and why patient-led support and access must improve.
Patient Group Spotlight: Burning Nights CRPS Support with Victoria Abbott-Fleming
Featuring Burning Nights CRPS Support
Victoria Abbott-Fleming shares her CRPS journey, the mission behind Burning Nights, and why patient voices must shape treatment and policy.
Patient Group Spotlight: The MVA Society & The Ultra-Rare Journey
Featuring MVA Society
A deep dive into the challenges and triumphs of Mosaic Variegated Aneuploidy advocacy with founder Jonathan Bracey.
Start Your Journey
Take the first step toward connection and support. Search for patient groups that match your needs today.
Start Your Search