Find Your Patient Support Community
Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
Why PatientGroups.ai?
Verified Communities
We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.
Global Reach
Access support groups from around the world, or find local communities near you that speak your language.
Patient-Centric
Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.
How It Works
Finding the right support group is simple. We've made it easy for you.
Search Your Condition
Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.
Explore Communities
Review detailed profiles of advocacy groups, including their mission, resources, and contact info.
Connect & Get Support
Reach out directly to join communities, access resources, or get involved with groups that feel right for you.
Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
Aplastic Anemia & Myelodysplasia Association of Canada
AAMAC funds research into bone marrow failure diseases such as aplastic anemia, PNH and MDS. The organization provides peer-to-peer support via telephone and email, educational materials, quarterly newsletters, and local support group meetings in various cities including Ottawa, London, Hamilton, Edmonton, Quebec, and Toronto. They also offer resources such as presentations, newsletters, articles, and emergency room cards. The organization is involved in clinical trials, with current trials conducted at Juravinski Cancer Centre, Princess Margaret Hospital, and Odette Cancer Centre. They engage in advocacy activities, provide patient education, and maintain a website with extensive resources.
Cancer of Unknown Primary Foundation
The Cancer of Unknown Primary Foundation is dedicated to research, education, and support for patients with cancer of unknown primary (CUP). It provides resources, guidelines, and a platform for patients, families, and healthcare professionals to improve diagnosis, treatment, and quality of life for CUP patients. The foundation advocates for increased research funding, awareness, and better clinical management of CUP. It also maintains a comprehensive website with articles, patient stories, and scientific publications to inform and support the CUP community.
Association for Glycogen Storage Disease (UK) Limited
We help individuals and families affected by Glycogen Storage Disease (GSD) by putting people in contact, providing information and support, publishing a magazine and holding conferences, workshops, courses and family events.
Neuromuscular Disease Foundation
The Neuromuscular Disease Foundation (NDF) is a nonprofit organization dedicated to supporting research, education, and advocacy for neuromuscular diseases, including GNE Myopathy. It provides patient resources, support groups, educational programs, and funds research initiatives. NDF aims to improve the quality of life for individuals affected by neuromuscular conditions through community engagement, awareness campaigns, and collaboration with medical and research institutions. The foundation also offers assistive devices, patient registries, and participates in clinical research and policy advocacy to advance treatment options and patient care.
The Ehlers Danlos Society
The Ehlers Danlos Society is a global organization dedicated to improving the lives of people with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). The society provides education, research funding, clinical resources, and advocacy to support patients, families, and healthcare professionals. It aims to increase awareness, promote diagnosis, and advance research to find better treatments and ultimately a cure for EDS and HSD. The society also offers support groups, patient stories, and community engagement initiatives to foster a strong network of individuals affected by these connective tissue disorders. The Ehlers Danlos Society is a patient advocacy organization dedicated to improving the lives of individuals with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). The organization focuses on research, education, support, and advocacy to raise awareness and improve diagnosis and management of these connective tissue disorders. It offers patient support programs, educational resources, and promotes research collaborations. The Society also engages in policy advocacy and provides a platform for patient stories and community engagement. It operates globally, with a focus on patient-centered initiatives, and collaborates with healthcare professionals, researchers, and other organizations to advance understanding and treatment of EDS and HSD.
Associação Brasileira de Câncer do Sangue
Abrale (Associação Brasileira de Câncer do Sangue) is a Brazilian nonprofit founded in 2002 that supports people with blood cancers and related hematological diseases. It provides patient support services (psychological, nutritional, legal, telemedicine), education, research and public-policy advocacy, and coordinates national outreach through a São Paulo headquarters and regional representatives.
The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
PatientGroups.co Podcast
Conversations with leaders, founders, and advocates driving change in the patient advocacy ecosystem.
Patient Group Spotlight: Burning Nights CRPS Support with Victoria Abbott-Fleming
Featuring Burning Nights CRPS Support
Victoria Abbott-Fleming shares her CRPS journey, the mission behind Burning Nights, and why patient voices must shape treatment and policy.
Patient Group Spotlight: The MVA Society & The Ultra-Rare Journey
Featuring MVA Society
A deep dive into the challenges and triumphs of Mosaic Variegated Aneuploidy advocacy with founder Jonathan Bracey.
Start Your Journey
Take the first step toward connection and support. Search for patient groups that match your needs today.
Start Your Search