Find Your Patient Support Community
Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
Why PatientGroups.ai?
Verified Communities
We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.
Global Reach
Access support groups from around the world, or find local communities near you that speak your language.
Patient-Centric
Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.
How It Works
Finding the right support group is simple. We've made it easy for you.
Search Your Condition
Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.
Explore Communities
Review detailed profiles of advocacy groups, including their mission, resources, and contact info.
Connect & Get Support
Reach out directly to join communities, access resources, or get involved with groups that feel right for you.
Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
Bone Cancer Research Trust
The Bone Cancer Research Trust is a UK-based charity dedicated to funding research, providing support, raising awareness, and advocating for patients affected by primary bone cancer. They organize events, support families, and collaborate with research institutions to improve diagnosis and treatment options. The organization also engages in policy work and maintains a range of educational and support resources for patients and healthcare professionals. The Bone Cancer Research Trust is a patient-focused organization dedicated to funding and supporting research to find a cure for primary bone cancer. They provide educational resources, support services, and advocate for patients and research. They are involved in clinical trials, research collaborations, and policy engagement. The organization offers various programs and campaigns to raise awareness and support patients. They have a history of funding numerous scientific publications and have a comprehensive financial profile. The Trust operates primarily in the UK, with a focus on bone cancer conditions, including primary bone cancer and sarcomas. They have a leadership team comprising medical professionals and researchers, and collaborate with pharmaceutical and research partners. They actively participate in regulatory and policy activities related to cancer research and patient support.
Leukaemia UK
Our mission is to bring together the leukaemia community so we can find and fund the life-changing research that matters most. Together we can stop leukaemia devastating lives through research, awareness and advocacy.
Hrvatska udruga leukemija i limfomi (HULL)
<p>The association works with the aim of helping patients suffering from hematological diseases, developing new research programs and treatment methods, and to this end undertakes the following activities:</p><ul><li>Organizes the treatment of patients suffering from leukemia, lymphoma, and related diseases.</li><li>Collects donations, and develops and implements programs to help patients suffering from leukemia, lymphoma, and related diseases.</li><li>Encourages new methods of treatment, and limits professional and financial assistance for these programs.</li><li>Supports programs to help patients and their families.</li><li>Supports research work in the field of etiology, therapy, and treatment of leukemia, lymphoma, and related hematological diseases.</li><li>Develops unrelated bone marrow transplantation programs in the Republic of Croatia.</li><li>Organizes seminars and consultations, and distributes information from these meetings to health and scientific institutions.</li></ul>
IFOPA
To fund research to find a cure for FOP while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide.
Epilepsy Sparks
Epilepsy Sparks is a platform providing information, research, and resources related to epilepsy, neurology, neuroscience, and genetics. It aims to support individuals affected by epilepsy and related neurological conditions through education, research involvement, and advocacy. The organization is part of Media Evolution Ltd, based in London, UK. It offers various resources including facts, glossaries, research projects, and conferences. The website emphasizes that information is not a substitute for personal medical advice and encourages consultation with qualified clinicians.
Mesothelioma UK
Mesothelioma UK is a patient advocacy group dedicated to supporting people with mesothelioma, an asbestos-related cancer. They provide information, support, help with benefits or compensation, and access to specialist nurses for mesothelioma patients and their families in the UK.
The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
PatientGroups.co Podcast
Conversations with leaders, founders, and advocates driving change in the patient advocacy ecosystem.
Patient Group Spotlight: Burning Nights CRPS Support with Victoria Abbott-Fleming
Featuring Burning Nights CRPS Support
Victoria Abbott-Fleming shares her CRPS journey, the mission behind Burning Nights, and why patient voices must shape treatment and policy.
Patient Group Spotlight: The MVA Society & The Ultra-Rare Journey
Featuring MVA Society
A deep dive into the challenges and triumphs of Mosaic Variegated Aneuploidy advocacy with founder Jonathan Bracey.
Start Your Journey
Take the first step toward connection and support. Search for patient groups that match your needs today.
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