Supporting patients worldwide

Find Your Patient Support Community

Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.

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People supporting each other in a healthcare setting

Why PatientGroups.ai?

Verified Communities

We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.

Global Reach

Access support groups from around the world, or find local communities near you that speak your language.

Patient-Centric

Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.

How It Works

Finding the right support group is simple. We've made it easy for you.

1

Search Your Condition

Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.

2

Explore Communities

Review detailed profiles of advocacy groups, including their mission, resources, and contact info.

3

Connect & Get Support

Reach out directly to join communities, access resources, or get involved with groups that feel right for you.

Featured Communities

Browse our curated list of patient advocacy groups and support networks making a difference today.

ALK Positive

ALK Positive

ALK Positive Lung Cancer (UK) is a registered charity (1181171) established by patients, their families and friends. We are a community from different backgrounds and walks of life - each with our own individual story. Established in 2018, our purpose is to extend the overall survival and quality of life of ALK-positive lung cancer patients across the UK.

Cancer Laryngectomee Trust

Cancer Laryngectomee Trust

Our aim is to promote and assist the relief of all people in the UK who have had a laryngectomy

Rett UK

Rett UK

Rett UK is the only UK charity that provides professional support to people living with Rett syndrome across the UK. Rett UK was founded in 1985 round a kitchen table by Yvonne Milne MBE. Since then we have grown to be the leading provider of information to not only families but also medical professionals new to the world of Rett syndrome.

Team Lopez Foundation

Team Lopez Foundation

The Team Lopez Foundation was incorporated in memory of Alex Lopez who was tragically lost to pancreatic Cancer. Our mission to honour Alex’s legacy is to raise funds for Pancreatic Cancer Research. We have established with Sydney University the Alex Lopez PhD Scholarship in Pancreatic Cancer. The scholarship named in loving memory of Alex, plays a pivotal role in attracting talented PhD students from around the world to improve the survival rates of pancreatic cancer patients. Over the last 15 years, University of Sydney clinicians based in their teaching hospital on the Royal North Shore campus, have become leaders in treating pancreatic cancer. Patients treated by their team survive almost twice as long after diagnosis compared to the average Australian pancreatic cancer patient treated elsewhere. At the University of Sydney, as part of the Kolling Institute at the Royal North Shore Hospital, provides the research foundations that the team refine into best practice.

Leukaemia Care

Leukaemia Care

Leukaemia Care is the UK’s leading leukaemia charity. For over 50 years, we have been dedicated to ensuring that everyone affected receives the best possible diagnosis, information, advice, treatment and support.

Batten Disease Family Association

Batten Disease Family Association

The BDFA’s mission is to enable everyone who is affected by Batten disease to live life to the full and secure the care and support they need until we find a cure. The BDFA offers informed guidance and supports families and professionals who work with them as well as actively increasing awareness of the disease and funding future research to identify potential therapies and ultimately a range of cures. The BDFA works across the rare disease sector to influence change in policy and processes as a collective voice.

The Power of Community

Navigating a health condition is easier when you have the right support. Here's what you can find.

Shared Experiences

Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.

Practical Information

Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.

Emotional Support

Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.

Advocacy & Awareness

Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.

Start Your Journey

Take the first step toward connection and support. Search for patient groups that match your needs today.

Start Your Search