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Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.

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Why PatientGroups.ai?

Verified Communities

We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.

Global Reach

Access support groups from around the world, or find local communities near you that speak your language.

Patient-Centric

Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.

How It Works

Finding the right support group is simple. We've made it easy for you.

1

Search Your Condition

Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.

2

Explore Communities

Review detailed profiles of advocacy groups, including their mission, resources, and contact info.

3

Connect & Get Support

Reach out directly to join communities, access resources, or get involved with groups that feel right for you.

Featured Communities

Browse our curated list of patient advocacy groups and support networks making a difference today.

The Leukodystrophy Charity

The Leukodystrophy Charity

Alex, The Leukodystrophy Charity is all about delivering high quality support, advice, knowledge and care for those affected by one of the leukodystrophies. The majority of these conditions cause progressive neurodegeneration, are largely untreatable and sadly terminal, and those affected deal with many common factors. Some of the less rare leukodystrophies already have established and reputable support groups providing excellent resources for sufferers and we signpost to these organisations and endeavour to work in partnership where possible. However, many of the very rare leukodystrophies have no support organisation working for them – Alex TLC focuses on the similarities caused by these conditions, embracing all affected within a community of Tender Loving Care.

Cancer Support UK

Cancer Support UK

<p>We provide practical and emotional support to people with cancer, during and after the treatment period.</p><p>We support people with all kinds of cancer across the UK. Our services are designed and delivered by people who have experienced cancer themselves – to improve the experience of others.</p> Cancer Support UK is a UK-based charity dedicated to supporting cancer patients and their families throughout the cancer journey. It emphasizes emotional and practical support, including free Cancer Coach programs (peer group support, digital learning, and Focus Forwards workshops) for adults who have completed cancer treatment. The organization offers Cancer Kits and workplace training, signposting, and educational resources, and invites donations and involvement through volunteering and referrals. The site notes impact such as helping 4,952 people in 2020 and highlights storytelling and shared experiences to raise awareness of its services. Core activities include running Cancer Coach programs (peer groups online or by phone, digital learning, and focused workshops), providing educational resources and materials (Cancer Types, Signposting, Resources), offering cancer-related patient support services, and broader fundraising and outreach efforts.

KBG Syndrome Foundation

KBG Syndrome Foundation

HOME KBG SYNDROME RESOURCES ABOUT THE FOUNDATION CONTACT US PARTNERS VOLUNTEERING Our all-volunteer board has a deep respect and gratitude for the community volunteers working to build awareness for KBG syndrome. Learn about how you can help. The KBG Syndrome Foundation was founded in June 2015 as a affiliate of The Epilepsy Association of Utah after CEO and President, Annette Maughan's son was diagnosed with the condition. While speaking with the geneticist, she and her husband, Glenn, were told to use social media and online searches to learn more and find support for his newly found diagnosis. They thought, why USE social media when someone needs to BE the social media outlet for families and researchers alike.

PCB Foundation

PCB Foundation

The PBC Foundation is the only UK organisation exclusively dedicated to providing support and information to those affected by PBC. PBC (Primary Biliary Cholangitis) is a long-term, auto-immune condition which affects the liver.

Childhood Eye Cancer Trust

Childhood Eye Cancer Trust

CHECT Publications page describing the organization’s publishing activity, including InFocus newsletter, the Impact Report, and the Annual Report & Accounts, and directing visitors to latest news and contact information. The page confirms CHECT as the source of these publications and provides a contact address (The Royal London Hospital, Whitechapel Rd, London) and general contact details (info@chect.org.uk, 0207 377 5578). The site is the CHECT main site (chect.org.uk).

Myotubular Trust

Myotubular Trust

Myotubular Trust, research and funding for centronuclear myopathy as well as supporting families experiencing this life threatening disability

The Power of Community

Navigating a health condition is easier when you have the right support. Here's what you can find.

Shared Experiences

Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.

Practical Information

Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.

Emotional Support

Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.

Advocacy & Awareness

Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.

Start Your Journey

Take the first step toward connection and support. Search for patient groups that match your needs today.

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