Find Your Patient Support Community

Avery's Hope

Avery's Hope is a nonprofit organization dedicated to supporting children and families affected by pediatric gastrointestinal (GI) disorders. They provide patient assistance programs, educational resources, support services, and organize community events to raise awareness and foster a supportive community for those impacted by rare pediatric GI conditions. The organization collaborates with medical professionals, researchers, and other advocacy groups to improve the quality of life for affected children and their families. Their initiatives include summer camps, art and yoga therapy programs, and fundraising events such as cycling and music festivals. Avery's Hope also advocates for policy changes and increased research funding to address unmet medical needs in pediatric GI health. Avery's Hope is a nonprofit organization dedicated to supporting individuals and families affected by rare diseases. They provide resources, advocacy, and support services to improve quality of life and access to care. The organization is based in New Hope, PA, and is a registered 501(c)(3). Their initiatives include patient support programs, educational resources, and community engagement. They collaborate with various partners and participate in advocacy activities to influence healthcare policies. Avery's Hope also offers programs such as the BrAvery Awards, BasiCare Plus, Healing Arts Program, and Summer in HOPE Day Camp. They maintain a presence on social media platforms and have a network of affiliated organizations. The organization is committed to transparency and community support.

AkaliAZO

The Group of Volunteers against Cancer - EmbraceZO was founded in 1976 with headquarters in Piraeus. In 46 years of action and contribution, AgaliaZO Group supports cancer patients. OEKK-AgaliaZO is managed by an eleven-member Board of Directors, whose elected members are either patients or have experience with the disease. The Group consists of members and volunteers. At the same time, to achieve its work, it is supported by professionals in the field of communication, psychological support, management of accounting and financial issues, as well as secretarial support. In addition, it collaborates with experienced and renowned Scientists of all specialties in the anti-cancer field, who constitute the Scientific Committee of the Group. OEKK-AkaliAZO has had a Branch in Heraklion, Crete since 2007 for the needs of the citizens of the region. Finally, it hosts and supports the Panhellenic Association of Laryngeectomists PAN.SY.LA since 1989.

World Pancreatic Cancer Coalition

Pancreatic Cancer Action

What we do: Early diagnosis Subscribe Taking Action in Scotland The team at Pancreatic Cancer Action Current vacancies Contact Us Support from Trusts and Foundations Financial information Your privacy About Pancreatic Cancer Action We are the only UK charity that specifically focuses on improving pancreatic cancer survival rates through early diagnosis in everything we do. We raise awareness of the symptoms and risk factors of pancreatic cancer across the year. Join us by raising awareness of pancreatic cancer and by sharing your story! Founded by a pancreatic cancer survivor, Ali Stunt, who proves that survival is possible, Pancreatic Cancer Action’s vision is a day when everyone is diagnosed early and survives pancreatic cancer. Quite simply, we know that pancreatic cancer can be detected early, and as long as we are here and continue to be supported, we will do all we can do to make sure this happens more and more.

The Glaucoma Foundation

The Glaucoma Foundation is dedicated to developing a cure for glaucoma through innovative research, collaboration and education. Our goal is to eradicate blindness caused by glaucoma.

Ellen MacArthur Cancer Trust

The Ellen MacArthur Cancer Trust is a national charity that inspires young people aged 8-24 to believe in a brighter future living through and beyond cancer.