Find Your Patient Support Community
Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
Why Use Phormulate?
Verified Communities
We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.
Global Reach
Access support groups from around the world, or find local communities near you that speak your language.
Patient-Centric
Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.
How It Works
Finding the right support group is simple. We've made it easy for you.
Search Your Condition
Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.
Explore Communities
Review detailed profiles of advocacy groups, including their mission, resources, and contact info.
Connect & Get Support
Reach out directly to join communities, access resources, or get involved with groups that feel right for you.
Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
Baggy Trousers UK
<p>Baggy Trousers UK is a non-profit organisation saving lives by raising awareness of the signs and symptoms and providing vital support to those impacted by testicular cancer</p> Contact page for Baggy Trousers UK, a registered charity in England and Wales focused on Testicular Cancer Awareness. The site features a contact form, donation prompt, and social media channels. Charity No. 1160724. Baggy Trousers UK is a cancer charity based in the North West of England founded by Jack Broadley in 2014. Its aims are to (1) promote and protect the physical and mental health of sufferers of testicular cancer, (2) provide financial assistance, support, education and practical advice to those affected by testicular cancer, and (3) advance the education of the general public in all areas relating to testicular cancer. The organization delivers awareness talks and showcases awareness exhibitions/stands in public and corporate settings, distributing self-help materials (leaflets, posters and step-by-step checking cards). It provides financial and peer support to men directly affected by testicular cancer via telephone, email, social media and a monthly peer support group. Primary contact support includes a phone line and email for peer support, and the charity runs a monthly peer support group.
Rareminds
Rareminds is a registered charity in England and Wales, no. 1205120. Its mission is to provide affordable, timely access to highly specialised counselling for the rare disease community, and campaign for recognition of the importance of specialist mental health support by informing policy, practice, and promoting standards of excellence. It is partially funded by donations and sponsorship via unrestricted grants. Rareminds operates independently of companies and does not endorse any products. It does not have editorial or clinical control over content, activities, or service provision. The organization supports emotional wellbeing, counselling, training, consultancy, and awareness activities for the rare disease community.
British Thyroid Foundation
We understand that being diagnosed and living with a thyroid disorder can have a big impact on your life. We are a patient organisation dedicated to supporting people to live better with thyroid disease. Since 1991, our charity has been providing resources to help people better understand and manage their thyroid condition. We work with medical professionals to provide information that is evidence-based. All our volunteers have first-hand knowledge of thyroid disease. Through our network of telephone contacts, local groups and Facebook groups, we offer support based on patient experience. We also provide regular opportunities to hear from other patients and medical professionals at our popular information events.
EURORDIS-Rare Diseases Europe
EURORDIS-Rare Diseases Europe is a non-profit alliance of patient organizations in Europe dedicated to empowering, supporting, and advocating for people living with rare diseases. It coordinates network activities, policy initiatives, information and support for patients and families, and collaborates with partners to advance rare disease research and policy.
Fondation A.R.C.A.D
A.R.CA.D Foundation is a French research and patient advocate non-profit charity founded in 2006. It works on different levels nationally and internationally to raise awareness, provide education and advocate for the prevention, treatment and cure of gastrointestinal cancers.
Lymphoma Action
Lymphoma Action is a registered charity in England and Wales (1068395) and in Scotland (SC045850). It provides information, support, and advocacy for people affected by lymphoma. The organization offers a range of patient support services, educational resources, and campaigns to raise awareness and improve patient outcomes. It collaborates with healthcare professionals and policymakers to influence policy and advance research in lymphoma. The organization maintains a website with extensive resources, including self-management tools, wellbeing videos, and clinical trial information. It operates in the UK and has a global reach through online resources and social media platforms.
The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
Start Your Journey
Take the first step toward connection and support. Search for patient groups that match your needs today.
Start Your Search