Find Your Patient Support Community
Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
Why PatientGroups.ai?
Verified Communities
We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.
Global Reach
Access support groups from around the world, or find local communities near you that speak your language.
Patient-Centric
Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.
How It Works
Finding the right support group is simple. We've made it easy for you.
Search Your Condition
Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.
Explore Communities
Review detailed profiles of advocacy groups, including their mission, resources, and contact info.
Connect & Get Support
Reach out directly to join communities, access resources, or get involved with groups that feel right for you.
Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
Cancer of Unknown Primary Foundation
The Cancer of Unknown Primary Foundation is dedicated to research, education, and support for patients with cancer of unknown primary (CUP). It provides resources, guidelines, and a platform for patients, families, and healthcare professionals to improve diagnosis, treatment, and quality of life for CUP patients. The foundation advocates for increased research funding, awareness, and better clinical management of CUP. It also maintains a comprehensive website with articles, patient stories, and scientific publications to inform and support the CUP community.
AkaliAZO
The Group of Volunteers against Cancer - EmbraceZO was founded in 1976 with headquarters in Piraeus. In 46 years of action and contribution, AgaliaZO Group supports cancer patients. OEKK-AgaliaZO is managed by an eleven-member Board of Directors, whose elected members are either patients or have experience with the disease. The Group consists of members and volunteers. At the same time, to achieve its work, it is supported by professionals in the field of communication, psychological support, management of accounting and financial issues, as well as secretarial support. In addition, it collaborates with experienced and renowned Scientists of all specialties in the anti-cancer field, who constitute the Scientific Committee of the Group. OEKK-AkaliAZO has had a Branch in Heraklion, Crete since 2007 for the needs of the citizens of the region. Finally, it hosts and supports the Panhellenic Association of Laryngeectomists PAN.SY.LA since 1989.
Myhre Syndrome Foundation
The Myhre Syndrome Foundation is a nonprofit organization dedicated to supporting individuals with Myhre syndrome, advancing research, and providing resources and community support. They organize conferences, webinars, and provide educational materials to improve understanding and management of the condition. The foundation also collaborates with clinicians, researchers, and advocacy groups to promote awareness and develop targeted therapies. Their activities include patient and family support, medical guidance, research funding, and community engagement.
Chordoma UK
Over the last few years, Professor Flanagan’s research team and colleagues have taken tumours from patients treated at RNOH (with their consent and ethical approval), and 5 chordoma cell lines have been established from these tumours. 3 other cell lines have been generously donated from other researchers. This means that for the first time, a reasonable number of cell lines are available to screen against a large number of drugs / compounds (1000-2000), some of which are already used in the treatment of other tumours, and some of which are in development. By studying the effect of 100s of drugs on the chordoma cell lines we should be able to identify what induces the expression of brachyury. If can identify this/these, we have other potential targets to which drugs can be developed. We will also investigate if we can ‘silence’ brachyury in the chordoma cells using a virus. Research using these cell lines is has recently commenced and it is hoped that the outcome of this work will have an impact on the way all chordoma patients are treated worldwide.
Spohn Cancer Support
SPOHNC is a vital resource for head and neck cancer patients. We have had an enormous positive impact on meeting the psychosocial needs of patients as well as preserving, restoring, and promoting physical and emotional health. SPOHNC is a foundation for patient and family education and awareness.
Epilepsy Sparks
Epilepsy Sparks is a platform providing information, research, and resources related to epilepsy, neurology, neuroscience, and genetics. It aims to support individuals affected by epilepsy and related neurological conditions through education, research involvement, and advocacy. The organization is part of Media Evolution Ltd, based in London, UK. It offers various resources including facts, glossaries, research projects, and conferences. The website emphasizes that information is not a substitute for personal medical advice and encourages consultation with qualified clinicians.
The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
PatientGroups.co Podcast
Conversations with leaders, founders, and advocates driving change in the patient advocacy ecosystem.
Patient Group Spotlight: The Swallows with Chris Curtis
Featuring The Swallows
Chris Curtis shares his head and neck cancer journey, the mission behind The Swallows, and why patient-led support and access must improve.
Patient Group Spotlight: Burning Nights CRPS Support with Victoria Abbott-Fleming
Featuring Burning Nights CRPS Support
Victoria Abbott-Fleming shares her CRPS journey, the mission behind Burning Nights, and why patient voices must shape treatment and policy.
Patient Group Spotlight: The MVA Society & The Ultra-Rare Journey
Featuring MVA Society
A deep dive into the challenges and triumphs of Mosaic Variegated Aneuploidy advocacy with founder Jonathan Bracey.
Start Your Journey
Take the first step toward connection and support. Search for patient groups that match your needs today.
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