Association KBG

Association KBG is a French organization that supports patients with the KBG syndrome and their families. It aims to provide information, support, and advocacy for individuals affected by the syndrome. The organization highlights the importance of socialization, education, and medical support for children and adults with KBG syndrome. It organizes events, provides resources, and collaborates with medical centers. The association also maintains a website with educational materials, videos, and contact information. It is recognized as a public interest organization, and its activities include raising awareness, supporting research, and facilitating community connections.