Ectodermal Dysplasia Society
Unit 1 Maida Vale Business Centre Maida Vale Road Cheltenham Gloucestershire GL53 7ER
The Ectodermal Dysplasia Society is a charity dedicated to improving the health and well-being of people whose lives are affected by Ectodermal Dysplasia (ED).
Conditions they support
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Hypohidrotic Ectodermal Dysplasia (XLHED)Incontinentia PigmentiCryopyrin-Associated Periodic Syndromes
Genetic Disorders
- Incontinentia Pigmenti
- Cryopyrin-Associated Periodic Syndromes
Ectodermal Dysplasia
- Hypohidrotic Ectodermal Dysplasia (XLHED)
About this group
The Ectodermal Dysplasia Society is a charity dedicated to improving the health and well-being of people whose lives are affected by Ectodermal Dysplasia (ED). We work together with people who have ED, their families, researchers, health and other professionals to develop and share expertise, increase awareness and understanding, and assist with the day-to-day management of ED.
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