Hope for Hasti
Hope for Hasti is a parent led charity, directed by Chris Brannigan, Hasti’s Dad, and Hengameh Delfaninejad, Hasti’s mum. Hasti is just 10 years old and she dreams of being a chef and a dancer. Hasti however has a rare genetic disease, Cornelia de Lange Syndrome (CdLS). Hasti’s Mum and Dad decided to start the charity in January 2020 with view to funding the research and development of a gene therapy for CdLS.
About Us
Contact Information
- Phone: +44 79201 62569
- Email: hello@hopeforhasti.org
- Website: https://www.hopeforhasti.org/
Our Location
Social Media
Have you been diagnosed with one of these conditions?
- Other Rare Disease
- Genetic Disorders
If you have been diagnosed with any of the above, get in touch with us.
Or email Hope for Hasti
Display "Featured on PatientGroups.ai" on your site
Help drive awareness to your website
Place this code anywhere on your site, it will link back here: