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International Prader-Willi Syndrome Organisation

Since 1991 IPWSO has supported national PWS associations, as well as people with PWS, their families and the professionals who work with them. Our vision is a world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals. We are working to achieve this goal by uniting the global PWS community to collectively find solutions to the challenges of the syndrome and to support and advocate for people with PWS and their families, PWS associations, and professionals who work with people with PWS.
About Us
Contact Information
Conditions We Support

Genetic Disorders

  • Prader-Willi Syndrome (PWS)

If you've been diagnosed with any of these conditions, we're here to help.