Myotubular Trust
Myotubular Trust, research and funding for centronuclear myopathy as well as supporting families experiencing this life threatening disability
About Us
Our Mission
“The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy”
Contact Information
Conditions We Support
Myotubular Myopathy
- X-Linked Myotubular Myopathy (XLMTM)
Centronuclear Myopathy
If you've been diagnosed with any of these conditions, we're here to help.
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