National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD) is a patient advocacy organization dedicated to the identification, treatment, and cure of rare diseases. It provides resources, support, and advocacy for patients, families, and healthcare professionals. NORD also promotes research, policy development, and education to improve the lives of those affected by rare conditions. The organization collaborates with medical centers, research institutions, and industry partners to advance understanding and treatment of rare diseases. NORD offers patient assistance programs, educational resources, and hosts events to connect the rare disease community.