Pompe Support Network
Based in the United Kingdom, we are a network of individuals, families, scientists, and healthcare professionals who aim to improve the lives of all people living and working with Pompe disease. The network is run by members of the Pompe community, for the benefit of the Pompe community.
About Us
Contact Information
Conditions We Support
Cardiovascular
Genetic Disorders
- Other Rare Genetic Disorders
Musculoskeletal Disorders
- Polymyositis/Idiopathic Inflammatory Myopathy
Rare
- Pompe Disease (Glycogen Storage Disease Type II)
If you've been diagnosed with any of these conditions, we're here to help.
Link to this page
