Prader-Willi Syndrome Support (South Africa)

Prader-Willi Syndrome Support (South Africa) is an organization of families and professionals dedicated to working together to offer support, raise awareness, provide education, and advocacy for people living with Prader-Willi Syndrome in South Africa. The organization provides support to families affected by PWS, raises awareness about the condition, offers educational resources, and advocates for the rights and needs of individuals with PWS. It is part of the broader Rare Diseases South Africa (RDSA) umbrella organization and is affiliated with the International Prader-Willi Syndrome Organisation (IPWSO). The organization encourages families to register with RDSA and participate in the global PWS registry managed by FPWR to support research and understanding of PWS. It also promotes community engagement and provides a platform for sharing stories, news, and resources related to Prader-Willi Syndrome.