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Timothy Syndrome

Our mission is to improve the diagnosis, treatment and care of individuals with CACNA1C-related disorders, including Timothy Syndrome and LongQT8, and to support the families and carers of those diagnosed. We support families and individuals by sharing our experiences through our online community, at our Family Day and our conferences.
About Us
Contact Information
Conditions We Support

Other Rare Genetic Disorders

  • Atypical Timothy Syndrome

CACNA1C-related Disorder

  • Timothy Syndrome
  • Non-syndromic Long QT Syndrome 8 (LQT8)

If you've been diagnosed with any of these conditions, we're here to help.

Link to this page

Link to this page on PatientGroups.ai