Hereditary Angioedema Association
10560 Main Street, Suite PS40, Fairfax City, VA 22030, USA
The US Hereditary Angioedema Association (HAEA) is a non-profit advocacy organization serving people with Hereditary Angioedema (HAE) and their caregivers.
Conditions they support
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Hereditary Angioedema (HAE) (C1 Esterase Inhibitor [C1-INH] Deficiency)
Immunology
- Hereditary Angioedema (HAE) (C1 Esterase Inhibitor [C1-INH] Deficiency)
About this group
The US Hereditary Angioedema Association (HAEA) is a non-profit advocacy organization serving people with Hereditary Angioedema (HAE) and their caregivers. HAE is a very rare and potentially life-threatening genetic condition involving swelling of various parts of the body, hands, feet, or face. Our association is a community of people affected by HAE and their loved ones who are leading the fight in HAE research, advocacy and finding a cure. Through a passionate commitment to the HAE community, we offer a wide variety of services and resources that further HAE education, clinical research, community engagement, access to medications, personalized support networks, and a wide range of services to help people living with HAE lead a normal life.
How they can help
Personalized patient support networks, Access to medications and reimbursement assistance, Educational resources and programs
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