VHL UK Ireland
To relieve the charitable needs of persons who have von Hippel-Lindau Syndrome (VHL) and similar genetic conditions such as Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) and Birt-Hogg- Dubé Syndrome (BHD) and their families and carers in the UK and Ireland for the public benefit in particular but not exclusively by:
- Providing support and advice regarding their genetic conditions
- Providing funds for research into the genetic conditions and for equipment to assist with such research
- To advance the education of the public in all matters concerning the genetic conditions
Please note the charity is unable to give grants or loans to individuals to help their financial needs. We advise contacting a larger organisation
About Us
Contact Information
Conditions We Support
Genetic Disorders
- VHL Syndrome
Oncology
- Renal Cell Carcinoma
- CNS Hemangioblastoma
Other Rare Diseases
- Rare Cancer Types
Supportive Care
Von Hippel-Lindau Disease
Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC)
- Renal Cell Carcinoma (associated with HLRCC)
Birt-Hogg-Dubé Syndrome (BHD)
- Renal Cell Carcinoma (associated with BHD)
If you've been diagnosed with any of these conditions, we're here to help.
Link to this page
