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VHL UK Ireland

To relieve the charitable needs of persons who have von Hippel-Lindau Syndrome (VHL) and similar genetic conditions such as Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) and Birt-Hogg- Dubé Syndrome (BHD) and their families and carers in the UK and Ireland for the public benefit in particular but not exclusively by:

  1. Providing support and advice regarding their genetic conditions
  2. Providing funds for research into the genetic conditions and for equipment to assist with such research
  3. To advance the education of the public in all matters concerning the genetic conditions

Please note the charity is unable to give grants or loans to individuals to help their financial needs. We advise contacting a larger organisation

Conditions We Support

Genetic Disorders

  • VHL Syndrome

Oncology

  • Renal Cell Carcinoma
  • CNS Hemangioblastoma

Other Rare Diseases

  • Rare Cancer Types

Supportive Care

    Von Hippel-Lindau Disease

      Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC)

      • Renal Cell Carcinoma (associated with HLRCC)

      Birt-Hogg-Dubé Syndrome (BHD)

      • Renal Cell Carcinoma (associated with BHD)

      If you've been diagnosed with any of these conditions, we're here to help.

      Link to this page

      Link to this page on PatientGroups.ai